Sickle Cell Awareness

The Hyacinth Scarlett Foundation’s Sickle Cell Awareness Program was created to increase awareness about sickle cell disease. Donations of Sickle Cell Warrior notebooks, coloring books, and crayons with other health items are then delivered to local hospitals and group homes. Items are continually replenished by participating supporters and the Foundation’s collections provide the opportunities for participants to find inspiration, encouragement, and learning experiences.

Projects have involved the following participating organizations:

Advent Health Orlando

Atrium Health: Levine Children’s Hospital North Carolina

Jackson Health: Holtz Children’s Hospital Miami

Shepherd Charities

Check out our article “Who Would Have Known: A Case for Understanding Sickle Cell Disease and Sickle Cell Trait in Honor of World Sickle Cell Day” published in The Florida Nurse here:

https://www.myamericannurse.com/who-would-have-known-a-case-for-understanding-sickle-cell-disease-and-sickle-cell-trait-in-honor-of-world-sickle-cell-day/

Travel for Care Lodging Grant Program

Travel for Care Lodging Grant Program with Atrium Health Levine Children’s Hospital for Patients with Sickle Cell Disease

For Families

We know that traveling for treatment can feel overwhelming! Understandably, there can be complex logistics in addition to added expenses during your time away from home. The mission of the Hyacinth Scarlett Foundation’s Travel for Care Lodging Grant Program is to ensure children battling sickle cell disease have the financial assistance needed to have lodging during treatment for clinical trials or innovative treatment modalities not currently available at their local treatment center.

Gas Card or Uber/Lyft Card to Attend Support Groups

We also offer a gas card or Uber/Lyft card for teens interested in attending a group support program.

For families interested in assistance through our Travel for Care Lodging Grant program or to request a gas or Uber/Lyft card, please fill out the request form here: https://forms.gle/DJ3ewaTvYzM7FSFy7

Please note that this program can only be applied for if referred by a member of the healthcare team at Levine Children’s Hospital, usually a social worker. If you need help connecting with your healthcare team about the program, please reach out to us at HScarlettFoundation@gmail.com